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Why are TB patients’ data shared for receiving nutrition support? 

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Why are TB patients’ data shared for receiving nutrition support? 


The Pradhan Mantri TB Mukt Bharat Abhiyaan launched in 2018, wherein Ni-kshay Mitras can volunteer to provide nutrition support to consented TB patients, is riddled with huge ethical problems. While the guidance document mentions that TB patients’ “consent is for receiving additional [nutrition] support”, TB patients are in effect consenting for something completely different — sharing their data. Receiving additional nutritional support from Mitras is conditional to TB patients sharing their data, as the consent form clearly spells out; TB patients can revoke consent at any point of time.

While the guidance document says TB patients must be told that they are “free to enrol or not enrol in the programme, and this decision will not affect any of the existing services available to the patient” prior to taking consent, this vital information is missing in the consent form. “The consent form for community support is basic with very little information. It is more a declaration than a consent,” says Dr. Anant Bhan, a researcher in bioethics.

It becomes even more problematic when obtaining consent physically is difficult as the process relies on patients sharing the OTP generated from the Ni-kshay portal with NTEP staff. “In this case, patients don’t even get a copy of the consent. How do we know what information is actually shared with patients,” wonders Dr. Bhan.

“The consent is ethically problematic,” says Dr. Amar Jesani, researcher in bioethics and public health. “First, it gives the patients the right to revoke consent without saying that revoking consent would not lead to stoppage of nutritional support. Second, it does not assure the patients that not consenting will not lead to non-provision of [other] nutritional support. On both counts, this consent actually scares or intimidates the patients by conveying that if they want to receive additional support, they must consent to share their information. A starving TB patient will be coerced to consent to sharing of information in this process.”

“If you are a TB patient and nutritionally deprived, is the consent really free and voluntary?” asks Dr. Bhan. Dr. Jesani shares the same view. “Consent ought to be not just informed and understood, but should also be voluntary. The consent here is coercive. Violation of voluntariness is blatant,” says Dr. Jesani. “There are many ways to conduct the programme ethically if one respects patients and their rights. This consent is a testament that they do not respect patients, and so they make no effort to devise an ethical way.”

While donors are required to not use beneficiary data for any purpose other than this programme when registering as a Ni-kshay Mitra, violation of patient confidentiality is rampant. Social media platforms are awash with photographs of TB patients, including children, receiving nutrition kits. The biggest violators are the Union Health Ministry, the Central TB Division, the TB programme, governors, politicians, and organisations. So, it is unsurprising that many testimonials of individual Mitras on the Ni-kshay website have photographs of TB patients receiving nutrition kits from them.

The scheme lacks standardisation and fails to ensure nutrition support to patients is universal. “Also, when there is enough evidence about the importance of nutrition, and when TB elimination is India’s priority, we don’t have to depend on charity to provide nutrition support to TB patients,” says Dr. Bhan.

The important question is this: why are TB patients required to consent to sharing data, and why are TB patients’ data shared with donors? While the guidance document requires the list of consented TB patients to be shared with Mitras each month, Tamil Nadu and Kerala have remarkably demonstrated that maintaining patient confidentiality is indeed possible while ensuring that patients receive nutrition support from Mitras.

Setting an example

In Tamil Nadu, all organisations including NGOs providing nutrition support to patients are required to handover the kits to district TB staff without TB patients coming into the picture; only in exceptional cases are patients asked to meet individual donors. According to an official, such exceptions are made only when individuals insist on ensuring that kits safely reach the beneficiaries. And even in such cases, individuals are prohibited from taking photographs of the patients.

The Differentiated TB Care programme, which is fully operational across Tamil Nadu, identifies TB patients with undernutrition at the time of TB diagnosis. Such patients are prioritised to receive the nutrition kits provided by Mitras, and the district TB officers handover the kits to patients without the donors coming into picture.

Besides ensuring confidentiality of patients is maintained while mapping them with donors, Kerala is ahead of the curve in providing nutritional support to TB patients. Every family of a TB, leprosy or cancer patient with annual income less than Rs.1,00,000 receives financial assistance of Rs.1,000 a month from the State for the entire duration of treatment. Also, the Treatment Support Group, an informal group that came into being in 2018, provides social support, including nutrition, to TB patients as per need so as to enable treatment completion. A few Local Self Government Departments (LSGD) in Kerala — which manage gram panchayats, block and district panchayats, municipalities, and corporations — already provide nutritional support of varying amounts to TB patients immaterial of their nutritional status.

Kerala has now gone a step further. As per a government order of March 6, 2025, from next financial year onwards, every TB patient in the State, no matter his/her nutrition or financial status, will receive nutrition kits worth Rs.1,200 every month for as long as the treatment lasts as part of the LSGD projects.



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School-based dance routines reduce the risk of non-communicable diseases among girls, study finds

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The study introduced, a school-based, culturally adapted dance program aimed at reducing risk factors for non-communicable diseases (NCDs) in adolescent girls in India.
| Photo Credit: File Photo

To tackle rising physical inactivity and associated health concerns among adolescents in India, a research team from Chennai conducted a study introducing a dance-based intervention to reduce non-communicable disease (NCD) risks among urban adolescent girls.

Published in Journal of Diabetes Science and Technology on April 21, the study titled A Novel High-Intensity Short Interval Dance Intervention (THANDAV) for Non-Communicable Disease Prevention Tailored to Asian Indian Adolescent Girls assesses the feasibility and efficacy of the THANDAV programme – short for Taking High-Intensity Interval Training And Dance to Adolescents for Victory over NCDs. It was led by R.M. Anjana, managing director of Dr. Mohan’s Diabetes Specialties Centre and president of the Madras Diabetes Research Foundation, in Chennai.

Design and delivery of the THANDAV model  

Dr. Anjana explained how this new dance-based program can help young girls in India become more active. She also addressed the cultural barriers often associated with traditional forms of exercise. “This is the first-of-its-kind and culturally appropriate dance intervention designed to boost physical activity among girls. In our country, the term ‘exercise’ often has negative connotations and isn’t always culturally accepted, especially for girls. So we introduced dance to make it more enjoyable and relevant,” she said.

The study was carried out in two government-aided schools in Chennai, involving 108 adolescent girls aged 13 to 15. The participants were randomly assigned to an intervention or control group. Those in the intervention group engaged in a 12-week high-intensity interval training (HIIT) dance programme, consisting of ten-minute sessions conducted five times a week during school hours. The routine incorporated traditional Indian dance forms and music for cultural familiarity and appeal. The control group continued with routine physical education, which served as a comparative benchmark for physical activity and health-related outcomes. 

“We started with a small pilot study to prove that it was a high-intensity activity. Now, we’ve taken it to schools through a randomised controlled trial, and the results have been very encouraging. The girls loved it, their mothers joined in, and we saw real health improvements — like reduced body fat, better metabolic profiles, increased step counts, and overall lifestyle changes,” Dr. Anjana said.

Key outcomes and statistical insights  

The study reports several statistically significant differences between the intervention and control groups across multiple physical and metabolic indicators after 12 weeks. Girls in the THANDAV group showed a substantial increase in physical activity, averaging 1,159 additional steps per day. Reductions in body mass index (BMI), total body fat percentage, and waist-to-hip ratio were also observed, suggesting improved metabolic health. 

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The rise of ‘text neck’: How phones are reshaping our spines

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Text neck is a repeated stress injury as well as pain, sustained from excessive watching or texting on handheld devices for long periods of time. The dependence on mobile phones is increasing rapidly, and people spend long hours on their phones, which leads to various musculoskeletal problems. Individuals with this syndrome usually present with neck pain, restricted cervical range of motion, reduced muscle strength and endurance, altered cervical joint position error, along with postural alterations like forward head posture and rounded shoulders as well.

According to recent research, 79% of those aged 18 to 44 have their phones with them virtually all of the time, with only two hours of their waking day spent without them.

In the neutral position, an adult’s head weighs 10-12 pounds. With the flexion of the head, the load increases towards the neck, and the weight is calculated to be 27, 40, 49, and 60 pounds at 15°, 30°, 45°, and 60° respectively. People who use a smartphone frequently have a downward gaze to focus lower, and keep their heads in a forward position for lengthy periods, which can cause neck strain, eventually hastening the process of ageing in the cervical spine. The symptom can result from improper workstations, poor ergonomics, inadequate breaks, and prolonged improper postures.

Common symptoms of text neck

Common symptoms of text neck include headaches, stiffness, shoulder pain, and persistent neck pain. In more extreme situations, tingling or numbness in the fingers or arms could be present, suggesting that nerves are being squeezed.

Text neck, if ignored and untreated, can result in serious long-term consequences, such as flattening of the spinal curvature, early onset of arthritis, spinal misalignment, spinal degeneration, disc space compression, disc herniation, nerve or muscle damage, inflammation of cervical ligaments, nerve irritation, and an increase in spine curvature.

A case study

Take this case of a young IT professional. He came in with severe neck pain radiating to the right arm and to the thumb. He had developed neurological weakness in the form of a poor hand grip and an inability to extend the wrist.

An MRI revealed a huge C56 disc pressing on the right side of the C6 nerve root, leading to this catastrophe. He was immediately taken up for endoscopic removal of disc, decompression of the affected nerve root, followed by replacement by an artificial disc with the aim to retain movements at that level and to avoid adjacent disc degeneration. He regained all of his lost power and was pain-free immediately, and was able to rejoin work in a week.

Not all people however, end up with the above scenario, and not all require surgical intervention unless neurological weakness is detected. A personalised approach, along with community awareness are both factors that can play a vital role in the rationalisation of text neck syndrome.

Integrated postural training in such cases can be a beneficial approach for individuals, combining pain management with a focus on increasing the cervical range of motion, strengthening, stretching, and postural correction.

Physical therapy methods that include a patient-centered approach, home exercises, and postural correction are the prime aspects of managing this syndrome at an early stage to avoid later consequences.

Physiotherapy interventions can be done to treat text neck syndrome, some of which include local ultrasounds, manual traction and manual exercises, cervical muscle stretching, and McKenzie exercises. There is an increasing need for a structured treatment protocol in such individuals to avoid long-term complications, which are mostly seen at an early age.

Treatment options

Simple changes in lifestyle can often be part of the initial course of treatment. Pain can be relieved and further damage can be avoided with physical treatment, posture correction, stretching exercises, and screen time reduction. Also helpful are ergonomic workstations, supportive chairs, and regular pauses when using a laptop or phone.

Surgery might be considered in situations where the spine has sustained structural damage, such as slipped discs or significant nerve compression. To relieve pressure on the nerves, the standard treatment is to remove the injured disc part. A minimally invasive procedure can be used to accomplish this, resulting in a quicker recovery and less discomfort. Surgery is only advised in cases when conservative measures have failed and the problem interferes with day-to-day functioning.

Prevention is better than cure

It’s easier to prevent text neck than to treat it. Maintaining an active lifestyle, holding displays at eye level, and encouraging proper posture can all have a big impact. In the digital age, spinal health can be significantly protected by early awareness and conscious practices. Spinal issues don’t have to be permanent, but smartphones are. Maintaining a strong and healthy spine while being connected is possible with minor adjustments and consistent attention to posture.

(Dr. Mohit Muttha is a consultant spine surgeon at Manipal Hospital, Kharadi, Pune. He can be reached at Mohit.muttha@manipalhospitals.com)



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All you need to know about: anxiety disorders

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All of us have experienced butterflies in the stomach just ahead of an important exam, nervousness as we’re headed for a job interview, or perhaps clammy palms just after we have risked our lives crossing a road in our country. Some amount of anxiety is normal, and even healthy — it may help alert us to a dangerous situation and focus our attention. An anxiety disorder however, goes beyond this. Anxiety disorders are the world’s most common mental disorders, says the World Health Organization (WHO), with an estimated 301 million people affected as of 2019. More women than men are affected by anxiety disorders. In India, as of 2017, a staggering 44.9 million people had anxiety disorders according to the research paper: ‘The burden of mental disorders across the states of India: the Global Burden of Disease Study 1990–2017’ in The Lancet Psychiatry.

What are anxiety disorders?

Anxiety is different from fear, though the two may often be confused. The American Psychiatric Association states that anxiety refers to anticipation of a future concern and is more associated with muscle tension and avoidance behavior, whereas fear is an emotional response to an immediate threat and is more associated with a fight or flight reaction – either staying to fight or leaving to escape danger.

People with anxiety disorders experience fear worry that is beyond the occasional — it can be intense, excessive and hard to control. These feelings, the WHO states, are typically accompanied by physical tension and other behavioural and cognitive symptoms. They are difficult to control, cause significant distress and can last a long time if untreated.

In order for a person to be diagnosed with an anxiety disorder, in general, the anxiety must be out of proportion to the situation and must impact their ability to function normally.

Children, adolescents and adults can all experience anxiety disorders.

What are the types of anxiety disorders?

There are several different types of anxiety disorders. These include: generalised anxiety disorder, panic disorder, specific phobias, agoraphobia, social anxiety disorder, separation anxiety disorder and selective mutism. People can have more than one anxiety disorder.

Generalised anxiety disorder or GAD is the most common type of anxiety disorder. GAD is characterised by constant, excessive worrying, tension and fear, often about everyday responsibilities such as those at work or at home or even about minor, routine tasks and chores. This worrying often can’t be controlled, it may be persistent and far more intense than the situation warrants.

GAD can develop slowly, sometimes from childhood or adolescence, or from adulthood.

What are the signs and symptoms of GAD?

Symptoms can be psychological and physical. Some common symptoms include: trouble controlling worries and nervousness, feeling restless and being unable to relax, feeling irritable, having trouble falling asleep or staying asleep, sweating, trembling or shaking, heart palpitations, an inability to concentrate, difficulties in making decisions, dry mouth, sweating, shortness of breath or rapid breathing, nausea and stomach upsets, tingling in the hands or feet, cold, sweaty hands and the urge to avoid things that cause the anxiety.

Anxiety disorders increase the risk for depression and substance use disorders as well as the risk of suicidal thoughts and behaviours, says the WHO.

What causes anxiety disorders?

The exact cause of anxiety disorders is unknown. They are believed to stem from a combination of factors including genetic, environmental and psychological. Researchers believe chemical imbalances of neuro-transmitters and hormones could play a role. Other factors that could increase the risk for an anxiety disorder include severe family or environmental stress, experiencing a traumatic event, living through abuse and long-term illnesses. Genetics also play a role as anxiety disorders can run in families.

According to the WHO, anxiety disorders are closely related to and affected by physical health. Many of the impacts of anxiety (such as physical tension, nervous system hyperactivity or harmful use of alcohol) are also known risk factors for diseases such as cardiovascular disease. In turn, people with these diseases may also find themselves experiencing anxiety disorders due to the difficulties associated with managing their conditions.

How are anxiety disorders treated?

After ruling out physical problems that may be causing the symptoms, your healthcare provider may refer you to a mental health professional for a diagnosis.

Treatment can include a combination of medication and psychotherapy. Medication can include anti-depressants and anti-anxiety medicines. Medicines may take time to work and some people may have to work with their doctors to find the right combinations, dosages and duration of medication.

Cognitive behaviour therapy, which is a form of therapy, is also commonly used to treat anxiety disorders. This involves learning different ways to think, react and behave, after identifying thought patterns that cause anxious feelings.

Self-care can also play an important role. This includes exercising regularly, cutting down on alcohol, quitting smoking, limiting caffeine, learning and practicing relaxation techniques, managing stress, meditation and participating in in-person or online support groups.

Although highly effective treatments for anxiety disorders exist, only about 1 in 4 people in need (27.6%) receive any treatment, the WHO notes. Barriers to care include lack of awareness that this is a treatable health condition, lack of investment in mental health services, lack of trained health care providers, and social stigma.

It is important to see your healthcare provider if you are experiencing symptoms of an anxiety disorder.



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